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April 17, 2007 - The day of Erics surgery was stressful to say the least. We arrived at the hospital at 6:30am and poor Eric is so terrified of doctors and hospitals that he starts screaming the minute anyone comes near him. So before he has surgery I always insist that he gets a sedative through his g-tube to calm him down. They took him back to the OR at around 7:30, and then we waited. Dr. Bradleys amazing NP Cathy gave us reports every hour. He was out of surgery and in the ICU by around 2:00pm. The surgery went well and they will be monitoring him much closer now. We hope that he doesn't have to go through any more heart surgeries but there is no guarantee. So for now we are just grateful that Eric is still with us and that he is still such a happy little boy. He inspires us with his resilience and love. Here is a link to pictures from his surgery http://myeric.myphotoalbum.com April 04, 2007- April 4, 2007- Eric had a cardiology check-up, during the echocardiogram they discovered another small aneurysm on his ascending aorta. The only symptom was that his blood pressure had been running high, (I check it at home). He was admitted to the hospital that day to control his blood pressure and to find out if his surgeon wanted to operate. Eric was released from the hospital on the 7th, his blood pressure was well under control and his surgeon wanted to discuss Eric's case with the surgical team. Although we were quite upset we were happy to have him home for Easter. Eric's wonderful surgeon Dr. Bradley called me and it was decided that he will have his aneurysm repaired on the 17th of this month.
August 21, 06 - Eric will have a dental cleaning and while in the OR the cardiologist will do an echocardiogram and EKG to make sure no more cardiac problems are going on. ......... Echo was done and the cardiologist said his heart and surrounding areas look good. Yay!! March 8th 2006 -
Eric went to the cardiologist for a check up. He had heart surgery
on June 30, 2005 and Dr. Forbus wanted to see how his heart was holding up.
He had a sedated echocardiogram as usual, and unfortunately they found a
large ascending aortic aneurysm. He was admitted to the hospital immediately
and we were taken down to get a CT scan. They confirmed the aneurysm and
Eric was put on medication to lower his blood pressure, to reduce the risk
of rupturing.
January 23, 06- Eric had bilateral hamstring and heel cord release to help his severe contractures. He was put in full leg casts for 3 weeks and was out of school for several months getting intensive home PT.
December 2005 - Right side was repaired, although around Christmas time Eric had to go into the hospital because he caught a virus which caused him to vomit so much he got dehydrated. He got out 2 days before Christmas.
November 2005- Eric had a left orchiopexy. Which is pulling the left testicle down into its rightful "place". He stayed overnight and was pretty uncomfortable for the next few weeks.
June 29, 2005 Eric had open heart surgery to repair his severe SVAS. The surgery went well, but we were shuffled out of the hospital after 3 days. After bringing Eric home he began vomiting blood. After going through the peds ER, Eric was readmitted to the hospital. His RBC count was low, so he received several blood transfusions. They scoped his stomach via laparoscope and found he had a large ulcer. After an extended stay in the hospital he was released the day before his 7th birthday July 13, 05.
February 4,2002: This is a beautiful poem sent to me by a sweet girl whose brother had WS but sadly died due to "heart surgery complications" She asked me to put it on my site , and I am honored to. In Memory of Taylor
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